Advocacy for sufferers of PA and B12d

[artyboots]

Ever wished someone official would talk to your surgery for you? Ever wish someone official would write giving your doctor some info on B12 to help you get tests or better treatment? If they were available, would you use such an advocate?

I suspect that if we had access to official, trained advocates we would receive different and better treatment of PA/B12d.

Perhaps I am the only one who feels this way. Please take the poll, choosing the selection that most closely represents the way you feel about advocacy for B12 deficiency. Advocacy could take various forms - even a phone call, or a supportive letter from an official advocate might make a difference.

There is no right or wrong answer. There is only the answer that is relevant to you and your circumstances. I think it is healthy for us to think about this, and debate it a little.

Thanks everyone!

[anotherwithpa]

I just wonder who one earth could be a PAS advocacy, I mean its all run by volunteers, like you and me, and that becomes a specialised job, no specialised people at PAS, just volunteers like you your self could be, if you wanted to help...People expect to much from a charity....its not paid, its only run by people with PA/ B12 def, what expectations can you have? Marre.